Recently a friend told me about a newly published book that could help many people. The book is coauthored by two ministry leaders, Jim Henry and Deb Terry. They wrote this book about their experiences of being caregivers for their loved ones who dealt with dementia and Alzheimer’s. They titled their book What Now: Help and Hope for Caregivers, Family, and Friends.
Thinking there is potential opportunity for future programming with my new position (more on that in future posts), I reached out to Deb. She graciously sent me a few copies. I finished my copy today and have already given away all the other copies to people who are walking this journey or provide counseling to those who are.
One caregiver that got a copy read it in four days and had this to say:
I cried and was just in the preface. I would describe the book as a big dose of realism with hope thrown in! I’ve started a journal for my husband, going back to January at his diagnosis and including decisions and events. I plan to start another one for me and my journey through this. I plan to go back through the book again at a slower pace, including looking at resources for each chapter. An example is a chapter about telling friends and family. His family hasn’t been told at his request, and we need to revisit that. Thank you again for giving me a copy.
When I was a child I watched my mom and her twin sister walk this road. This road isn’t easy. What Jim and Deb have produced is a resource to make the road less difficult. They did this by answering 18 questions addressing the journey from diagnosis (How Do I Share the Diagnosis? and What Can I Do to Prolong the Good Years?) through carrying on at the end (What Might I Expect When the End is Near? and How Do I Move Forward with My Life?).
If you are on this journey, get this book. If you know someone who is, get them a copy. In general, I encourage you to share this post with others to help Jim and Deb’s work accomplish its goal.